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Ashly's Skeletal Dysplasia - http://www.angelfire.com/or2/ashlysworldofwonders/about.html
A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites. |
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Story of Robert Purkis - http://swpurkis.pwp.blueyonder.co.uk/index.html
A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life. |
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Alpha1 Antitrypsine Deficiency - http://home.att.net/~a1ad/intro.htm
One man's perspective and journey with A1AD and a list of links and other resources from the internet. |
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Caleb's Courage - http://www.geocities.com/calebwaddell/
A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease. |
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Robert Kenneth Picklesimer - http://www.picklesimers.com/robert_kenneth.html
Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project. |