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Fragile X Association of Southern California - http://www.fraxsocal.org
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation. |
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Fragile X Syndrome - Diagnostic and Carrier Testing - http://www.faseb.org/genetics/acmg/pol-16.htm
A Policy Statement from the American College of Medical Genetics. |
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Maryland Fragile X Resource Group - http://www.mdfragilex.org/
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources. |
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Living with Fragile X - http://fragilex.ca
One family's account of raising 3 children with Fragile X. |
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Carolina Fragile X Project - http://www.fpg.unc.edu/~fx/
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them. |